Update and Apology

Morning everybody,

Before I start I really want to apologise for being absent for so long, I'm very disappointed in myself for not making more time for blogging but family and personal life problems have been difficult to cope with. Simon is struggling with a few things and I'm trying to support him whilst working on our relationship, dealing with the huge amount of essays and a presentation at uni, as per also trying to manage my health. So, in effect, I'm not trying to give excuses just explain why I've been gone for so long, and I'm genuinely very sorry. 

Anyway, on to the crux of the matter, I would like to give everybody an update on, well everything basically because so much has gone on since my last post! In terms of university things are going pretty good actually out of the 3 assessments we have completed this year I (and my group for one of the assessments) managed to get firsts in two of them which is absolutely amazing and well done to everyone else who submitted them all! I'm helping out friends with uni work and trying to work together, a study busy kinda set up and that's pretty fun too to be honest, I've always thought that teaching others is one of the best ways to consolidate your own learning so as I'm helping others I'm learning myself. 

We have just managed to finish our first semester of year 2, despite having 5500 words to write for essays over Christmas I am definitely looking forward to the break because we don't go back to uni until late January 2018! Actually, speaking of essays once I've finished this post I'll be starting another essay which I'm hoping to finish on Wednesday night or Thursday, probably Thursday because I'll get some absolute quiet with Simon and everybody else being out of the house and I tend to focus better when I'm alone; total loner me ha!

Oh Christmas as well!!!!! I'm crazy for Christmas it's the most wonderful time of the year (ha see what I did there) and I've had everybody's presents bought and wrapped since October so definitely ready to go now, as you can see from the picture as well we have got our christmas tree up and decorated and spent a lovely night a few weeks ago watching Home Alone. Oh also it was my birthday on the 14th of December and I turned 22! one of my oldest and most lovely friends managed to get Taylor Swift's 22 song stuck in my head ha, thanks Leanne, I can't wait to meet up with her tomorrow we never get enough time to see one another being so busy. I was totally spoiled for my birthday and Simon had booked us a weekend away in a log cabin with a hot tub... pretty amazing and I'd never been in a hot tub, by the end of the weekend I didn't want to leave the hot tub either, a nice glass of wine in your hand and bubbles was absolutely perfect! The picture to the right is the view we woke up to on Sunday and it was absolutely beautiful. Honestly, though, essays or not I am so excited for Christmas this year, I'm hoping to get up a post soon as possible, probably Thursday evening all about Christmas traditions in the Savage/Simpson home. 

 

Things with my health are kind of progressing weirdly, random things are going on in my body and it feels like an uphill battle to get some support. If you can remember I told you guys that doctors were wanting to put me on Liraglutide or Saxenda/Victoza as it might also be known, I did a whole post on it and what my concerns about it are, obviously there is a black box warning on the drug as it can cause different kinds of cancer or pancreatitis, this was a massive worry despite people telling me otherwise because there is a clear history of cancer in my family anyway, my mam, grandma, and great grandma have all had a kind of cancer, my cancer levels are raises slightly anyway so in my opinion, to put me on a drug for weight loss that I might not react to and the average weight loss for a normal person is alb every 3 weeks, this would be too risky a decision for me. So, yesterday when I attended my RVI appointment I basically putty foot down and refused that option for treatment, as impossible as it might be I would rather use my last breath to try and improve my health in terms of lifestyle changes rather than do it via a dangerous, in my opinion, drug. 

At the RVI yesterday the doctor has told me that I need an emergency gynaecology appointment because I've had issues with bleeding between periods and one major issue involving a lot of pain and bleeding, the doctor seems quite worried about that. I'm not too worried about it to be honest mainly because I have always had issues with my periods, and especially with endometriosis and PCOS, sometimes weird things can happen but at least it's best to get things sorted, I remember having a phone call with my GP surgery about the bleeding between periods and I had explained all my issues and the doctor on the other end of the phone told me and I do quote "oh it will be nothing" which is an alarming response from a GP but I have to admit my surgery is absolutely appalling. It's in this instance that I'm more thankful for my consultants and specialists at the RVI, they do such amazing work and I'm happy to be one of their patients to be honest. 

Oh I am also being referred to a sleep apnoea clinic... Apparently I snore haha! That'll be interesting to say the least :)

To be honest that's all I have been up to recently it's been pretty hectic trying to get ready for Christmas and going away and essays, presentations, health issues, family arguments and a whole lot of other stuff!!! Still I'm overjoyed to be back and absolutely can't wait to get bak to blogging regularly!

Thanks to all you guys who stayed with me and keep checking the blog regularly, I'm hoping to have exciting news soon as well as I may be arranging a call with someone from Rhythm, the company developing the drug Setmelanotide! So keep your eyes and ears open for that post coming soon hopefully :)

Have a wonderful day everybody!

Thanks for reading xxx

Exercise tips and Tricks - The POMC Series

Hello everybody!

Happy Sunday once again and I hope you've had an amazing week. Things have been absolutely maid here as Simon started back at University on Monday and I'll be getting ready to carry out more buddy duties this week, hospital appointment on Monday and dentist on Wednesday, feels like things are non-stop to be honest. Well, it means I'm not bored ha!

Anyway, I know I have been pretty delayed in posting recently but what with York and uni I've had a few post scheduling mishaps, mainly because one post that should be coming soon about a possible POMC "treatment" for want of a better word, will mean I'll need to do a massive amount of research on it and a lot of the information online I'm finding quite inaccessible so I'm relying on my doctor at the RVI to tell me a little bit more tomorrow. Obviously there's a post going up today about exercise tips and tricks that I've learned over the years, this one will include information on the best kinds of exercise I've found really helpful and what you can do to make the exercising process easier if you've got a genetic obesity condition. So, without further ado lets get on with it!

Exercising for anybody who is obese can be a difficult and emotional thing, I know a fair few obese people who simply don't want to exercise partly because they are scared of failing in terms of weight loss and partly because if they were to go to some local gyms in my area they are likely to get abuse shouted at them, which I always find infuriating... Why discourage somebody from going to the gym to improve their health when that is what a gym is for?! However, for people with a genetic obesity disease often they can put far too much pressure on themselves to work harder and lose the weight which as I've mentioned in many previous posts, with certain genetic obesity conditions it doesn't matter how much exercise you do the weight just won't drop off like the average person, so this can result in these people injuring themselves or putting too much stress on their bodies. I mean I'm not an exception I've spent hours doing stupid exercises trying to 'drop the belly fat' and lose 4 stones in a month' with crunches and such but it never works. 

Eventually when I got to 18 I realised that because of my disabilities the exercises that I was trying to do were harming my body and making me worser overall, I was trying to exercise to lose the weight rather than to be healthy and that was when I knew I had to change my mindset. The thing is if you exercise to lose weight you're not looking at the big picture, you're only looking at the outside and surface of your body, if you start to think that the reason you're exercising is to get healthier, to be more flexible and fit then you can open your mind to different exercise and routines that are out there and develop something particularly appropriate for you and your body. Getting fit on the inside might help the outside but in all honestly being overweight doesn't mean you're unhealthy, I have friends who cannot walk up the stairs without becoming breathless that are smaller than average sizes and have no medical problems like asthma, then I have obese friends who can walk a mile easily and not break a big sweat. 

I'm going to make a list now of things that I did once I had a change in outlook towards exercise, hopefully it will give some insight into how I managed to develop and exercise routine that is appropriate for me. 

• I wrote down what I was looking for with exercise, I wasn't looking to lose lots of weight just to become fitter and healthier.
• I did a lot of research on what kinds of exercises fit the criteria of what I wanted. Happily I found that Yoga was something that would improve my flexibility, muscle tone and wasn't too strenuous for my body. 
• I took up Yoga and took classes once every week, I started to see a small improvement in areas such as better sleep, my body didn't feel as tense which was a much needed improvement. Yoga has now become part of my daily routine as have some particular stretches; I don't want to do too much exercise as it is extremely painful for my legs and back when I over do it but I do enough to maintain the level of health I have now so my disabilities don't get any worse. 
• I made small lifestyle changes, years ago, rather than parking in the closest bays to shops I would park as far away as I could so i would have to walk father which for a time genuinely did help me, however since my weight gain has not levelled out and I have put more on I am not able to do that anymore, walking in limited for me however I would highly recumbent it for those of you who are able to. 
• Swimming was also a wonderful exercise for me as it tightened up muscles in my body around the stomach area making me feel better about myself, however swimming is also great as you can use it to relax your muscles and just gently bob along! No exercise has to be very exerting as I mentioned. 
• Due to a faulty hypothalamus I overheat and dehydrate extremely quickly so I always make sure I am hydrated and I ensure I take all medication with me such as my inhalers, my pain medication and I make sure I either exercise with someone else or I take my phone so if anything goes wrong I have a way of contacting people to get help. 

I would also recommend that before you exercise, particularly if you have a genetic obesity disorder that you go to your doctor and find out if there is any support from professionals or practitioners who could help you develop your own exercise routine, sometimes if you do it alone you may be a little over enthusiastic and end up damaging yourself. Always remember as well when you are trying to get yourself into exercise, for whatever reason, you won't see results straight away. A cliché as it sounds Rome wasn't built in a day and the fact that you are trying at all is an achievement you should be proud of.

Thank you all for reading and hopefully get the next post out within the next few days!

Have a wonderful Sunday, bye for now!

Xo