Life Update and Return to Normality

Good Afternoon everybody!

Finally managed to get this post written up! It's been 4 months and I'm not surprised it's taken this long but still, it's nice to have the time to write again. There's been quite a bit going on lately actually, I've been backwards and forwards from hospital in Birmingham loads but everything is going well so I'm a happy bunny. I've got a good few more posts coming up, 5 or 6 more posts after this one so it'll definitely keep me busy, but for now I though I would give all of you guys a little update.

The last time I was here I believe I was talking a bit about how I was doing a lot of research for my dissertation, I had picked a topic and I was so excited to get started on it, well things changed a little with that because around September time I completely changed my mind about what topic I wanted to do and basically had to disregard the 60 pages of work I had gathered over the summer. Nightmare! I've finally managed to choose a topic that I am settled with and really happy to do, the only problem is I don't think I will have enough words to write everything I want to about it haha! Still I have got about 30 pages of relevant quotes so I am well on my way to getting the research done and starting to write up the first draft of the literature review, woop woop! 

Snowy walk around Hardwick Hall late October

When I actually started back uni in September I was having a really struggle with my mental health and my physical health had been wobbly for a few months, I've started getting palpitations quite regularly, 5 to 6 times a day I get very strong palpitations that make me dizzy, doctors aren't quite sure why its happening because my heart is in pretty good condition and I'm eating and exercising well so I've kind of got to take things easy now. I ended up making a super hard decision to leave uni for the year, so I have taken a leave of absence from early November this year until September 2019 when I'll return to study hopefully in a better state. I have felt that since leaving there has been a huge amount of pressure lifted and I am managing to get my mental health back under control slowly, but I keep trying to push myself to do too much too soon which is never a good thing.

It feels so much better now that I am able to sit and work on my dissertation without the pressure of deadlines because now I know I can take a break or have a couple of days off when I need to recover, so I'm really pleased with that and it means I'm getting to spend more time with my family. Unfortunately since I've left i feel like I might have lost a couple of friends which that's just something that happens in life I suppose, friendship isn't a one way street and I need to remember I'm not the one who has to make all the effort; I've stayed in touch with some amazing people from uni though and I'm so grateful for those people :)

Outside of my uni life I've gotten myself a personal trainer which was a turn up for the books, I'm not at liberty to discuss this fully because of rules of pharma companies and such but I've been doing well health wise other than my palpitations and a chronic sinusitis (since APRIL!!), generally my physical health has improved a little and I have been getting out and about trying to walk more. This has meant that I've seen a good few changes in my body, not all of them good, so I've been trying to build up a bit of muscle and I must say my trainer is awesome, he doesn't work me too har and I'm able to take breaks as and when I need, couldn't ask for someone more understanding and the workouts are actually really fun... the soreness and aches aren't afterwards but hey ho haha. I'm really pleased with my progress and can't wait for my next session. I've been out walking Luna quite a lot, she gets walked everyday for 90 minutes (usually takes me 2 hours to get around mind but still its an improvement) unless its super cold then she shivers until I take her home or Simon takes his jumper off and wraps her up :)

Out new Christmas tree <3

I don't know how I would have managed with the immense pressure I was under if I hadn't had that little one to come home to, dogs are little angels and no house is complete without one. 

I've been working on the Invisible Disabilities and Disorders society at uni while I've been off, trying to help people with projects they're wanting to undertake, there's been a good bit of work on with that trying to talk to the Disability and Wellbeing teams at the uni but so far so good, hopefully we can plan some events soon and I will update you guys about that too. 

The final thing that I've got to update you all on is my absolute favourite thing in the world... CHRISTMAS!!!!!!!!! Oh my God, its December 1st tomorrow and I absolutely cannot wait! We have had out Christmas tree up since about November 7th, we had to put it up twice because the first time the lights went off and needed to do it again, then Luna came in and pulled the whole thing down! A chihuahua Vs. a 6ft tree! Last night me and Simon watched The Grinch and tonight we will be spending time with my nana watching National Lampoon's Christmas Vacation, so far we have also watches Spongebob Squarepants Christmas episodes, The Simpsons Christmas episodes, Jim Carey's A Christmas Carol and Adam Sandler's 8 Crazy Nights :) 

I love December because on the 14th it's mah birthday, then 17th is Luna's 1st birthday and then Christmas. I love to take my nana shopping eVery year for food and last minute presents so I'll be doing that this year which I can't wait for, I have sorted out my outfit for my big family meal and I and just so excited :) I hope all you guys are super excited too!

For now though I shall say goodbye and let you lovely people enjoy the last day of November! 

I'll be putting up another post later in the week and will aim to write around 1 blog post per week, apologies if not because I am still doing dissertation research and helping ready the house for Christmas!

Bye for now lovelies xx

Katy. 

Hate Free Zone: How I Cope with Hurtful Comments

Good evening all,

Image from Google.com

I hope you're all well and having a good day, the weather has been beautiful lately here in the UK so we have all been making the most of it. I had mentioned in a previous post that I had a number of other posts planned such as managing toxic friendships and such but a couple of days ago I had a bad experience. I woke up and did what i do everyday after waking myself up properly, I checked my email for my university, personal and blogging mail accounts and all was good except I had received a rather nasty email from someone who was clearly attempting to keep themselves anonymous. Usually I don't get a massive amount of emails on my blogging email account I've had some people talk to me and thank me for blogging so honestly and some women who have shared their stories about managing their weight and all of the people I've spoken to have been lovely up until today. The email I got today basically told me that what I was doing, what I had to say was pointless, I don't want to discuss everything that was said because it was absolutely vile and nobody should have to listen to or read that again, this blog is a safe space for larger bodied people and those with genetic obesity conditions.

I have been given so much support from so many amazing people since I mentioned this email online and I can't thank everybody enough but it was the mother of another warrior of genetic obesity who inspired me to write this post. I have experienced this kind of abuse all through my life, just as I am positive other oversight and obese, not just hose with genetic obesity have, and as much as this horrid person's words were upsetting I would like to share with you all how I cope when I have abuse directed towards me. 

• Stop obsessing - I struggled with this a lot when I was a child,  I would have something shouted at me in public and for the rest of the week, literally, I would spend every single waking minute torturing myself with the words that had been directed towards me until I started to believe them. One day I had been at College and someone had shouted something at me and I was so tired that day and so busy that I just smiled and walked away. I wasn't about to waste my energy that I could use working on assignments or trying to build up my own confidence by obsessing over a strangers words who didn't  know me whatsoever. Once I made the decision to smile and walk away the guy looked so confused and just mumbled something and he never shouted anything at me again despite me seeing him quire regularly in college. 

• I talked about it with people who understand - Throughout comprehensive school I had one particular friend, who is now an ex friend, who would not stand up for anybody but herself. She would regularly see me being berated at school and never said or did a single thing to stop it or make me feel better. When I started to surround myself with different people I felt so much more comfortable going to those people just to have a rant and get it off my chest, lots of swearing was usually involved, lost of shouting and usually I end up laughing at the stupidity of the people being involved. It does definitely help to offload to someone else who will listen then have a laugh about it!

•  I challenge them - I know this is extremely difficult to do for so many people but even  if you do it once it can make you feel so so much more empowered. I used to challenge people to shut up, tell them I would do this that or the other to them if they continued and as soon as they saw they were getting a negative reaction out of me they would carry on calling me names or hitting me and so on. Now when someone says something about or to me and I have the chance I am more mature and rational about it, I once asked someone what had gone so badly wrong in their lives that they had to be so abhorrent to a complete stranger and they literally didn't have an answer other than bright red cheeks and ears for me to look at. Other times when I can't be that bothered with people I will try and out do them with my vocabulary, I can almost guarantee that anybody who had the nerve to should rude words at someone in public is not very well educated either in qualifications or morals so try to confuse them where you can. It may sound mean but it is quite funny. The key to this is trying to deflate the commentator without provoking a negative reaction, ignoring them also works very well. 

•  Change how you view yourself - If you constantly listen to those awful comments, dwell on them and start to believe them you will never ever change how you feel when those comments come around again, which they will because we live in a society where fatness is despised, thinness is admires and aspired to and we cannot change that fact anytime soon. What we can change is our opinions of ourselves. Around 18/19 years old I started looking in the mirror every single day and telling myself 2 things that I was happy about one for my body and one for my personality. i started by telling myself that I had lovely eyes, because I do, and that I am a brilliant worker, because I am. Those 2 things everyday ld to 4, to 6 to 10 things I can list off that I am positive about. Eventually when you get those comments they start to roll off your back because why should I care about someone who things I am unattractive when I am a good friend, or really good at writing essays, I have a great bum and a pretty face. Eventually it becomes more important what you think of yourself than what anybody else can say to you to bring you down, because you will forget what was said 2 days ago and look in that mirror to see how freakin' amazing you are right now.

This might not have ben the most helpful post in the world, and these things I do to cope might not work for you but I can't stress how important it is for you to start viewing yourself as worthy, valued and relevant and stop obsessing over little comments that will not matter in 3 days never mind 3 weeks. Your mental health and self-perception is way more important, because the people who love you and care for you would tell you that nasty people aren't worth a second of your time. Life is too short. If anybody needs or wants to talk please go to the contact me page, find your favourite way to chat and send a message because I will always be here to talk, listen and laugh with you. 
Now get yourself to the closes mirror and compliment yourself ladies and gents! Have a wonderful evening. 

Katy xx

Exciting Things Going On!

Good evening all you gorgeous people!

I don't know how many time sI have to say this but I am really sorry for the extended absence, I'm doing my best to stay on top of things. There has been so so much going on lately, last time I posted I think I mentioned that I had finished uni for this year and would be preparing for my dissertation? Well I've finally managed to settle on a topic and have just discovered how much I adore social policy so I'm super excited time 10 to be getting ready for the dissertation. 

In terms of uni I actually found out that I finished my year with an overall first class, same as last year just at a higher degree and I'm hoping to keep that up for my final year and come out with an overall 1st for my undergrad degree. 

At the end of the year I went into uni to have some discussions with lecturers just about how to proceed with research for the dissertation and so on but I actually ended up getting myself and internship throughout the summer which basically involves doing some human rights research and writing a report on particular human rights abuses in a country of my choice. Human rights isn't something I've ever dealt with before but I've got to say it's been heartbreaking reading about some of the atrocities that are happening now throughout the world. Other than difficult and often heavy reading I am really enjoying it and it's something that I can add to my CV. I've also joined the University of Sunderland's Student Blogger team so I've put up a couple of posts for them right now and that's been so fun, I love blogging as you know and I love teaching and my blogging style tends to gravitate more towards academic help and support which is something that I am privileged to be doing and helping others with. 

I've also been volunteering with a company in Sunderland that promoted health and wellbeing and undertaking a few training course, so far I've been trained in emotional resilience and other similar things, I'm looking forward to becoming a fully fledged health champion. I feel like I am doing really well as lecturers at university are wanting to use m work as exemplary for next years students as well as getting some of my work published on the University of Sunderland Social Sciences blog soon so that'll be awesome! 

Unfortunately not everything has been rosy in terms of uni and personal life, I'm struggling with some issues with people in my inner circle, things are being made difficult for me and my mental health is starting to be impacted by it. The only thing that I can say about this topic as, obviously it's very personal to me is that an issue around friendships and supportive relationships becoming toxic to me is getting me significantly overwhelmed so I am attempting to distance myself from situations that I feel will be unhealthy for me. I am actually planning a post about this type of toxicity in your life as soon as I possibly can, it may take a while due to other commitments with the internship and dissertation research but because it's something I feel passionate about it is definitely on of the next posts coming up. 

I have been spending a huge amount of time in hospital lately backwards and forwards from the North East to the West Midlands for care and although I'm not at liberty to disclose any information about what has been going on, I can say that I have never felt this good and things are looking quite positive for me at the moment. I'm hoping to access some counselling services to help me manage my stress and emotions as there has been a significant amount of upheaval in my personal life and with my health and I am a complete advocate for counselling I think it's a wonderful way to relieve stress, learn new ways to cope with changes and sometimes it's better than ranting to family members because at least counsellors are paid to listen haha! I am also planning a post on my reasons why counselling services should be accessed if you're feeling overwhelmed of are struggling because it's a topic that is a real hot one in the media at the moment and definitely is something that needs to be talked about and de-stigmatised, so keep an eye out for that one! 

As you can tell, I have been a bit of a busy been and shall continue to be a busy bee until my feet drop of and my brain melts (if I don't melt before this heat that is) because if I have noting to do I will go mad. I have an exciting couple of weeks planned for self and Simon as we are planning to go to Simon's graduation ceremony for his Foundation Degree on Friday, we have dog trainers out on Thursday (because Luna is becoming a terror!), I'm off to see Pixie Lott with one of my best friends and hopefully another one of my wonderful friends, trips planned to go to Edinburgh, York, Whitby and Beamish open air museum coming up! I'm so excited for the future and honestly, I am overwhelmed at the joy I feel getting to share it with all of my amazing readers. I know I am not the biggest social media mogul or the best, most well known blogger out there but I am grateful for every single person who reads my blogs, thank you all!

P.S. If you would like to see the blog posts that I have created on the University blogging team please go to this link!,

Have an amazing day everybody and Happy Sunday!!!

Love Katy xx

Just me :)

The POMC Series: A Partner's Perspective

Hello everybody!

Earlier this week myself and Simon celebrated our 3 year anniversary of our relationship together, there have been many ups and downs in our relationship but we truly love each other and I wanted to take this opportunity to develop a post that I've been meaning to do for a long time. When I started this blog Simon asked me how he could help. This is his contribution, he has chosen to write and article for the blog outlining what it is like being in a relationship with someone who has a genetic obesity condition, and I myself could not be more grateful and proud of him. I hope you all enjoy his perspective and the next instalment of The POMC Series. Here goes...

"When a person is born into the world, they never have a choice in the cards they hold. Hair colour, the colour of ones eyes, even down to their individual personalities, nobody ever gets their say on what they want. This is no exception when it comes down to medical issues, issues that can be, or is, the bane of our existence. Personally, Asthma is my Achilles heel, one which has affected my whole life (Thank you, asthma!) yet it is a condition which I will never hope to submit to. However, there are some people in this life who really suffer much more that what we could ever comprehend, ones which we could never hope to understand unless we walk in their shoes. This post aims to shed a perspective in the life of my long-term partner, Katherine Simpson. 

The first, and best, picture I ever saw of this gorgeous woman

Me and Katy (her preferred name) have met under weird circumstances but we have that chemistry that just simply took off. No idea how she puts up with my randomness but that’s respect for you! We have had many dates out, however, it wasn’t long until I noticed problems with the way Katy was walking. She needed to stop on occasion and this only escalated the more I’ve been with her. Katy mentioned early early in our relationship that she suffered from POMC, Lordosis and a very unique genetic coding which is beyond my understanding. I have attended multiple doctors appointments and assessments as support and even medical professionals struggle with understanding what really makes Katy tick.

From my understanding, Katy suffers from a what-do-you-ma-call-it genetic deficiency in which her metabolism is permanently off. Because the body assumes that it is starving, fat is biologically formed and stored as a back-up energy source, not a great understanding as I mentioned but I wanted to write this without Katy giving me any direction so as to you you all what I see of this condtion. Due to this nature, the body can never truly function properly and this causes Katy to go up in weight. Newcastle RVI and Addenbrooks, Cambridge, are able to explain to a degree, and its such a difficult thing knowing that the one you love do dearly is not able to get treatment or help for an awful condition. Operations, some drugs and even gym has not worked; I can attest to how hard this sweet woman works, only changing shape but not losing weight whatsoever. I have experienced Katy suffer from an ovarian cyst which further compounds how much exercise and activities she can participate in. It is so upsetting to listen to your partner apologise for being who they are, because a medical condition stops them doing things they they desperately want to. 

Personally, I encourage Katy to the best of my abilities to rest and take breaks, yet she always felt guilty that she cannot have a normal life like everybody else in society. Memories with her are much better than distance she can walk and I have bad  short term memory anyway so there is no likelihood I would remember how far we travel anyway! Walking around places like Newcastle and the Metrocentre has always been a struggle, 10 minutes of walking puts a huge strain on her back, legs and pelvis. She is always hungry and finds it very difficult to manage that, she can eat a bigger portion than me and be hungry again minutes later as if she has never eaten at all!, any deviations can physically knock her sick. This is a medical attribute which I am wholly in the dark about and I am still learning more each day. 

I do feel empathy that Katy, no matter how much effort she tries, will just continually struggle. As her supportive partner, we will fight tooth-and-nail for medical and practical solutions but there are very limited channels open. Aspects of our life together have been negatively affected, I can’t express the pain you feel when you are walking down the street, hand-in-hand, with a woman you see as truly beautiful when she gets some disgusting comments shouted at her from afar. You want to go up to them and tell them the whole story but some individuals do not comprehend other individuals circumstances. Because of this, Katy’s confidence with being around others is shot; I wish she could see herself as the beautiful woman I see her as. A medical condition should be no reason whatsoever to make people feel isolated from the rest of modern society. Despite the medical flaws, her conditions does not own her, she aims to own it!!

One of our best nights together at Russell Howard

When I first met Katherine, it was a first for being with someone with such debilitating medical conditions. I was petrified when her cyst flared up two years ago, now I’m so relaxed she jokes that I’m too relaxed! Truth is, If I cannot compose myself to be of help, I should not be a lover at all. I am not size-ist so I do not judge on weight. However, I have have learnt so much about her and myself throughout the three years of us being together. I have adapted to Katy’s needs and as long as we make preparations, we still enjoy days out, even with back pains and struggles and my asthma! My general rule of thumb on looking after people is this;

• Whoever it is you are with, Love them 120%. Yeah, time management is hard, yet, everyone cares for their love. The addition of unorthodox medical conditions are no exception.

• Always keep calm. Managing tasks and looking after Katy is challenging but we always got there in the end. Patience can be low but do not snap and always try and communicate.

• Never go in a relationship if you are not willing to commit. A no-brainer, this one!

• Take time to understand your partner and what makes them tick. They will undoubtedly feel uncomfortable with themselves and they are humans too. No different to the rest of us!

• People can be abusive, what do they contribute to life anyway? You and your partner will be 100% better people than what bullies will ever be. 

People are still people, those with these medical conditions challenge life in hardcore mode, only strong souls can cope, I don’t believe things in life are given to you unless someone, somewhere knows you can cope. Katy copes so well. It is a strain on our relationship at times because I just want to help her but I know I am limited, if I could wave a wand and change things for her I would. Anybody who cares for someone with a long-term condition who loves them would change it for them. The only thing I can suggest for those living with, caring for and loving people with genetic obesity is be there for them and love them and make amazing memories with them, because just like everyone else on the planet, people with genetic obesity conditions are still people and I will always love my amazing partner and accept her for who she is."

By Simon Steel

And there you have it. My wonderful partner wrote those beautiful words as he writes everything else in his life, with passion and meaning. I hope you all found this post enjoyable and enlightening, I am off to give my fella a massive cuddle!

Katy xx

100th Post - Appreciation and Thanks

Hi everybody!

Image from google

I hope you're all doing well today and making the most of your Monday. So today's post is my 100th post on this blog! It seems to have gone by so quickly and I've had the best time so far writing posts and putting out content for you guys. When I decided to shift the purpose of this blog up a little I knew I would be keeping up the lifestyle aspects and some other aspects of the blog previously but it would be more heavily intertwined with raising awareness for POMC as you all know. Since that shift the reception of this blog, the support I've received from all of my amazing readers has been amazing and I've been able to make some lovely new friends from all around the world!!
I was terrified of the reception I would get by telling my story but I knew how important it would be for all of the other people out there who are either struggling with their weight, long-term condition of genetic obesity conditions, and I am astounded everyday of love love and support given, I've been able to help many people, my email has been relatively non stop since last year! Please keep them coming if you have any questions or want more information please ask, as I always say every little helps in the way of raising awareness for so many misunderstood, heavily stigmatised and awful genetic obesity disorders. 
I thought I thought I would share with you some of the amazing things I have had the opportunity to get involved in thanks to this blog and so many supportive people around the world!

My Invisible Disabilities and Disorders
Community as UoS!

• Took part in an interview with a journalist from the University of Sunderland - nothing came of said interview which was hurtful but still it was a great experience to take part in that I am glad I agreed to.
• Met with the, then, president of the Student's Union to help set pans into motion of a day of rooting awareness for genetic obesity conditions as the University of Sunderland. 
• Got to talk with numerous people from around the world about their experiences of living with and parenting one with a genetic obesity condition. 
• Conversed with numerous people working for awareness organisations and pharmaceutical companies aiming to develop treatments and awareness for genetic obesity conditions!
• Set up a community (a mini society) at the University of Sunderland for individuals living with invisible disabilities while studying at University of Sunderland, at the beginning of the next academic year we will be discussing some changes that we wish to make at the University.
• Become a health champion at a local wellbeing centre, helping to improve the lives of people around me, currently trained  in promoting Emotional Resilience!

Thank you all!

All of the amazing stuff I've been able to do is because of the confidence that my readers give me to keep promoting for these horrible conditions, conditions that impact families, friends, colleagues and most importantly the individual diagnosed with it. If at least 1  of my, almost, 10,000 readers has taken something from my blog then I am doing something right! Thank you so much for being there for me, continuously reading my blog, giving me motivation and support and I can only say that I am SO excited to continue this blogging journey with you as there are lots of exciting things going on at the moment that I will HAVE to tell you all about at some point ;) 

Lovs of love,

Katherine xx

My Reflections: 10 Things I've Learned in 10 Years!

Good Evening everybody,

I hope all is well with everybody and you're all taking care of yourselves. This past couple of weeks has been pretty difficult for us as a family, something that you should know about us is that we adore dogs. Any breed, size, age, ailment or temperament, we will take them all and this week our beloved Bullmastiff dog Bella passed away, my whole family is devastated obviously, and we all need some time to get over it because she was simply amazing and she was like a person in a dog's form.  I've also started back at university and I'm properly in the swing of things now, looking forward to assignments and praying as hard as I can to avoid drama but that's clearly not working at the moment haha!

The past couple of weeks I've been doing a lot of reflections, looking at my life, my attitude and things I've been through, I've been thinking of making some changes and looking into the possibility of maybe moving house at some point but nothing will be rushed. So, all of that reflections led me to think about everything I have learned form my experiences and wow was I surprised to say the least! We go about our daily lives spilling out the wisdom we've learned to people who need it, want it or who just will listen to it but we never really stop to think "where did that come from?" or "what led me to this?". Therefore I would like to share some of the rings I've learned with you and maybe some experiences that led me to these points. 

It's okay to have no clue what you want to do with your life - This can be an issue for a lot of people to be honest and I've had friends and ex-friends who simply have no idea what they want or can do with their qualifications and experiences but to some extent that's okay. There are people with numerous degrees who still have no idea what they want to do, but sometimes if you just take it a day at a time and just try and enjoy what you're doing as you do it then things will usually fall into place. I must say if you don't enjoy whatever it is that you're doing then you need to leave it, even if that's a relationship or a job just get out because life is far too short to waste being unhappy. 

Not having a boyfriend/girlfriend in school, college or uni isn't the worst thing - For many people this can be pretty much a confidence killer, just as being virgin through school or not going to any crazy parties can make you feel like a loser, not having a boyfriend/girlfriend throughout school can be a major confidence killer. It's not the be all and end all of everything though, think of it this way the more time you spend swooning over a guy/girl the more you are doing yourself a disservice, you would be focusing on YOU! Learning your own boundaries, finding new and fun hobbies, time with friends and family, working harder at school and getting better grades is an amazing achievement. Also most people in school who say they have a BF/GF that they love will likely split up as they aren't mature enough* at that point to hold a relationship down AND those people saying they have lots of awesome sex... yeah? No, they usually aren't and even if they were nobody is amazing at sex the first time they have it, so stop worrying!

Me being a happy and semi-confident person!

Staying true to yourself makes you a much happier person - I can't say much about this one as it is what it says on the can. If you are true to yourself and take part in the things that you like, if you hang around with the people you love, listen to good music, watch awesome movies and wear the soothes you are comfortable in then you will have a much better life, nobody wants to be stuck in clothes they can't stand, listening to God-awful music with people they don't get on with do they? Exacly! I actually learned this when I hit 18 because I had been trying so so hard to fit in at college with the girls in my class and I just kind of realised one morning while the girls talked about sex positions, modern music I had no idea about and what they were doing at the weekend that I thought "my god I'm 18 trying to be 16 and I would be happier at home this weekend with a book, completed coursework, candles on an laughing with my Mam and Nana" so that's what I did and I was totally bloody happy with it!

Making time for friends and family, even if you're super busy or stressed, is usually **always worth it - I included this one because a few weeks ago I met up with my oldest and greatest friend Leanne (Leanne, if you're reading this I still can't believe we have been friends for 10 years!). She signed herself up for the 3 years of gruelling mental torture known as university, although our courses are very different we do know, and anyone else who tries super hard to do well at uni, that uni takes up a high amount of our time and can be difficult to arrange get togethers but she told me that she always made times for her friends and family which is something I struggled with, if i have work that usually comes first so I don't stress about it, but lately I've been arranging more time out with friends, family and  generally just for myself too because honestly it's a welcomed break away, the work isn't going anywhere but time with friends and family is so precious.

People are cruel/assholes/ignorant... at EVERY age - Can't express how many times I want you to read and re-read that back because it's so true, there are so many nasty, cruel people out in that work that it's impossible to shield yourself away from them so growing a thick skin is essential, I'm still working on mine so I am in no position to preach at all but my God what I have definitely helps! Nastiness and childish behaviour doesn't stop at a particular age, it isn't just reserved for children, some of the most digesting comments I've ever received have been from young and older adults... Imagine a child's vocabulary with more swears basically. This kind of this does need to be ignored if it's nothing too serious but discrimination and ignorant comments need report in in the right circumstances such as at work or in a public situation if there is anyone available to report it to. Keep yourself right and safe at all times thought. Also as a side note to this one, if you have friends then they, even after a long time and lots of memories can still turn their backs on you and vice versa. 

Believing in your own strength and abilities is essential if you want to do anything in this world - This one for me, is pretty much the follow on the the above point, hence the structure of this post. If you are going to meet assholes at every stage in your life then you're going to meet barriers to what you're wanting to do, you'll need to overcome barriers and fight for what you think is right. A recent problem with my consultant who diagnosed my POMC has fought me this mores than ever; if you spend your whole life thinking that you can't do something or that you're not good enough then that's all you will ever be because you will never go outside of your comfort zone or gain confidence. If, however, you work hard and believe that you can be do something, even if it is as simple as talking to someone over the phone to order something or ask something then you have taken that step to increasing you confidence, each time you do that it will get easier, you will know that you can talk to someone on the phone and then on to the next challenge it is! If you think that you do have the strength to carry on when you're having a stressful day then you will get through it and getting into bed at night will be much sweeter. 

Money has no meaning outside of its purpose - I like this one. In fact this one is my favourite because it took me longest to realise to be frank. I didn't have many friends throughout school, the ones I did (excluding a couple) were pretty shitty and made my life hell most of the time, but I was so scared of being alone that I would spend a huge amount of the money I received in trying to buy their affection. I would take them on days out, buy them whatever they wanted, make sure if they didn't have enough money I would give it to them. I have needed fuel money to take friends places and asked for help if they took me out of my way but when they didn't help I let it go because hey that's money they could spend on themselves and I'll manage somehow... But the thing is money has 0 value if it's not being used for its original purpose which is to purchase goods, so all of that money I spent on "friends" didn't miraculously help improve our relationship, it just meant they took advantage of me and some of my friends are still doing that now just not necessarily with money but emotional support. The friends and people that mattered didn't care if I had no money at all, we could have a day in the house baking or cross-stitching or reading or even just sitting in silence and that was enough. I wish I'd known that earlier. 

Working hard always pays off in some way - I promise that this is true! If you work hard at something, even if you're rubbish at it then it'll pay off somehow, it might just pay off because you feel good about yourself for working hard but it definitely pays off, and working hard at something will give you a sense of achievement which in turn definitely helps building confidence and self-esteem!

Nothing comes before your health - This is something that I learned far too late in life. Something to know about me is that I went to an absolutely awful comprehensive school, the pupils there were evil, the teachers sub-par and didn't care about anything that was going on. I remember that after being diagnosed with POMC when I first started comprehensive school that my parents got a nurse form the RVI into school to explain to the class and teachers what exactly was wrong with me, one fact being that I would need to eat regularly and drink more, one rule in our school was no drinking in class so I remember getting my water bottle taken away from me and one particular teacher ripped up my toilet pass (a card that lets you go to the toilet whenever you need, no questions asked). My Mam went up to the school and went crazy with the teachers after that because by the time I got home I had held my need to use the toilet so long that a couple of days late i developed a kidney infection and I was so dehydrated I couldn't talk properly. It was then (in year 10 when I was around 15) that I literally vowed never ever to let somebody get me into that situation because no 60 minute lesson about WW2 is more important than my health. The same goes for you, nothing is ever more important than your health, so if you're very ill, mentally needing  break or physically unable to do anything then you have to take that time away, schedule it in if you have to to make sure you get everything done that you need doing but always make sure you have good health because you can't do very much without that on your side. 

You have got to think of yourself - For a lot of people this can be pretty difficult myself included because some people have a natural instinct to look after other people before themselves. I suppose that this point is the accumulation of all of the other points all rolled into 7 seemingly unimportant words. I don't mean that you should take being selfish to the extremes but I do mean that in everybody's life there comes a time when you simply have to put yourself first. There are so many reasons people can choose to put themselves first, some people do it when they're sad, others when they're angry or stressed or distressed or happy; I find that putting yourself first should be a running theme throughout your life, it should involve self-care and support; I put myself first by not allowing people to take advantage of me the way I used to and taking time to get to know my limits and boundaries so that I can stop people getting in the way of my happiness, if someone is going to cause upset or difficulties in my life then get rid of them because like I said at the beginning... life is simply too short. 

Our gorgeous Belle <3

So, there we have it, those are the 10 most important things I've learned in 10 years (from 12 years old to 22) and I hope you guys have really enjoyed reading this post because I loved writing it! Please come back next time and have an awesome week until then! As silly as it may seem to some, I am dedicating this post to our beautiful dog Bella Savage who passed away 08.02.2018, she really was the best friend a person could hope for and she will be more then missed. 

Love, Katy xo

Staying Positive: See the Silver Lining!

Hey everyone!

I hope you're all doing really well, and the first month of your New Year is going awesome! I'm writing this post today because I'm aware the past couple of weeks have been full of emotion for people in my family, and all of my friend groups in some way as many of my friends and most of my immediate and extended family have some pretty serious health problems, I know these issues have been getting my loved ones down and they are struggling to see the bright side of life and to me that is just awful to see. 

It's so important when you have ill health to look at the positive things you have, for example yesterday I spent the day with my best friend and her partner, Nana and Simon baking all day, we both made lovely cakes and if you want to see mine head over to my personal instagram and it's the most recent cake picture! I made a beautiful white chocolate lemon drizzle cake and it smelled amazing! Me and my friend can't eat our cakes, she seemed quite frustrated at this and admittedly when you love cake and know you can't have it or taste what you've made it is very annoying, I can't eat my cake because it isn't worth it in my opinion, if I am going to eat something less healthy than usual I will wait until there is something that truly takes my fancy; albeit those times are few and far between but it makes me appreciate  and enjoy it more for waiting. The thing is everybody on earth has their own cross to bear in terms of their health but something I think is so essential when dealing with your lifestyle when you're chronically ill or have a long term/lifetime illness is that you've got to see the positive side of things even if sometimes it feels like you're fighting a losing battle.

When I first made changes to my diet it was super difficult and after years not not eating very well, or at least as well as I should've been, I was miserable for a long time because I thought I had to cut out foods that I love, like cakes and bacon but I did a lot of research and I've found so many different cake recipes that barely use any sugar and taste really good, most of those are vegan cakes which although they may not be ad indulgent as some other cakes hey I still get to eat cake! Plus vegan diets are recommended to some people with PCOS to relieve symptoms so I'm in a way being a little healthier than I would be if I made a Mary Berry cake. In terms of bacon just changing how its cooked and the kind of bacon makes a huge difference to a diet, I can still have things I loved but they are more strictly moderated and cooking techniques and products use to make my meals are slightly different. That is one of the ways that I tend to se the positive with my dietary changes because that was one of the most difficult things to cope with as it was such a major change for me as I like routine and at the time didn't eat a lot of different things.

Another positive thing is that although I can't eat my cakes I get to have so much fun baking them and trying out recipes, Simon is my personal tester and it's so awesome watching people eat and enjoy the food that you've made, the smells are wonderful the colours and textures are awesome! One of my favourite quotes, I don't know who by, is "life is not about wiring for the storm to pass, its about learning to dance in the rain" and that really resonates with me and I would definitely suggest that others remember this quote when you're feeling down. Every time something negative happens or you're feeling generally crappy just take a minute to think about the positives of the situation.

Image from Google.com

For example I had a friend a while ago who started on a treatment that involved daily injections, her way of seeing the positive is that she was scared of needles and at least after the treatment she wouldn't be scared anymore because she would get used to the feeling! That's an awesome way of looking at things if you ask me! My Mam has M.E., a basically null immune system, hundreds of allergies, epilepsy and lots more wrong with her which means she doesn't leave the house much, from this she has learned new sills and gotten really involved in arts and crafts, and although her life is a major struggle at times she has still gained a wonderful new hobby from it all.

Seeing the positive in the negative can change your outlook on life massively, honestly I'm planning  few posts within the next month and I'm very excited about them, during the planning of them I've realised how much I have truly changed and how positive my outlook on life is now. I'm hoping that if anyone reading this is feeling down at the moment, for whatever reason, that this little post does help in some way and if you're feeling low because of ill health please just remember that you're still alive, you still have people around you who are happy to see you turn up to work, or school or uni everyday, people who are happy to have you say hello to them or even just people who are happy that you managed to get out of bed this morning, that's an achievement in itself and I really mean that. In the next month I've to have a couple more posts up and while I was planning them it's been a real shock to look through some of my old stuff and see how much I have truly changed and now much more positive my life is now.
If every anybody needs some support or to talk please go to my Contact Me page and reach out to me because I will ALWAYS be willing to listen if you need to talk. I truly hope this post has helped someone out there because even the smallest of positives can make a huge difference.
Please be safe everybody and remember to see those silver linings!
Love,
Katy xo

Update and Apology

Morning everybody,

Before I start I really want to apologise for being absent for so long, I'm very disappointed in myself for not making more time for blogging but family and personal life problems have been difficult to cope with. Simon is struggling with a few things and I'm trying to support him whilst working on our relationship, dealing with the huge amount of essays and a presentation at uni, as per also trying to manage my health. So, in effect, I'm not trying to give excuses just explain why I've been gone for so long, and I'm genuinely very sorry. 

Anyway, on to the crux of the matter, I would like to give everybody an update on, well everything basically because so much has gone on since my last post! In terms of university things are going pretty good actually out of the 3 assessments we have completed this year I (and my group for one of the assessments) managed to get firsts in two of them which is absolutely amazing and well done to everyone else who submitted them all! I'm helping out friends with uni work and trying to work together, a study busy kinda set up and that's pretty fun too to be honest, I've always thought that teaching others is one of the best ways to consolidate your own learning so as I'm helping others I'm learning myself. 

We have just managed to finish our first semester of year 2, despite having 5500 words to write for essays over Christmas I am definitely looking forward to the break because we don't go back to uni until late January 2018! Actually, speaking of essays once I've finished this post I'll be starting another essay which I'm hoping to finish on Wednesday night or Thursday, probably Thursday because I'll get some absolute quiet with Simon and everybody else being out of the house and I tend to focus better when I'm alone; total loner me ha!

Oh Christmas as well!!!!! I'm crazy for Christmas it's the most wonderful time of the year (ha see what I did there) and I've had everybody's presents bought and wrapped since October so definitely ready to go now, as you can see from the picture as well we have got our christmas tree up and decorated and spent a lovely night a few weeks ago watching Home Alone. Oh also it was my birthday on the 14th of December and I turned 22! one of my oldest and most lovely friends managed to get Taylor Swift's 22 song stuck in my head ha, thanks Leanne, I can't wait to meet up with her tomorrow we never get enough time to see one another being so busy. I was totally spoiled for my birthday and Simon had booked us a weekend away in a log cabin with a hot tub... pretty amazing and I'd never been in a hot tub, by the end of the weekend I didn't want to leave the hot tub either, a nice glass of wine in your hand and bubbles was absolutely perfect! The picture to the right is the view we woke up to on Sunday and it was absolutely beautiful. Honestly, though, essays or not I am so excited for Christmas this year, I'm hoping to get up a post soon as possible, probably Thursday evening all about Christmas traditions in the Savage/Simpson home. 

 

Things with my health are kind of progressing weirdly, random things are going on in my body and it feels like an uphill battle to get some support. If you can remember I told you guys that doctors were wanting to put me on Liraglutide or Saxenda/Victoza as it might also be known, I did a whole post on it and what my concerns about it are, obviously there is a black box warning on the drug as it can cause different kinds of cancer or pancreatitis, this was a massive worry despite people telling me otherwise because there is a clear history of cancer in my family anyway, my mam, grandma, and great grandma have all had a kind of cancer, my cancer levels are raises slightly anyway so in my opinion, to put me on a drug for weight loss that I might not react to and the average weight loss for a normal person is alb every 3 weeks, this would be too risky a decision for me. So, yesterday when I attended my RVI appointment I basically putty foot down and refused that option for treatment, as impossible as it might be I would rather use my last breath to try and improve my health in terms of lifestyle changes rather than do it via a dangerous, in my opinion, drug. 

At the RVI yesterday the doctor has told me that I need an emergency gynaecology appointment because I've had issues with bleeding between periods and one major issue involving a lot of pain and bleeding, the doctor seems quite worried about that. I'm not too worried about it to be honest mainly because I have always had issues with my periods, and especially with endometriosis and PCOS, sometimes weird things can happen but at least it's best to get things sorted, I remember having a phone call with my GP surgery about the bleeding between periods and I had explained all my issues and the doctor on the other end of the phone told me and I do quote "oh it will be nothing" which is an alarming response from a GP but I have to admit my surgery is absolutely appalling. It's in this instance that I'm more thankful for my consultants and specialists at the RVI, they do such amazing work and I'm happy to be one of their patients to be honest. 

Oh I am also being referred to a sleep apnoea clinic... Apparently I snore haha! That'll be interesting to say the least :)

To be honest that's all I have been up to recently it's been pretty hectic trying to get ready for Christmas and going away and essays, presentations, health issues, family arguments and a whole lot of other stuff!!! Still I'm overjoyed to be back and absolutely can't wait to get bak to blogging regularly!

Thanks to all you guys who stayed with me and keep checking the blog regularly, I'm hoping to have exciting news soon as well as I may be arranging a call with someone from Rhythm, the company developing the drug Setmelanotide! So keep your eyes and ears open for that post coming soon hopefully :)

Have a wonderful day everybody!

Thanks for reading xxx

Long Awaited Return!

Hello lovelies!

Wow, it's been well over two years since my last post and SO SO SO much has happened and I can't wait to tell everybody!

First thing's first, I'm very sorry for the long break, my health deteriorated massively for a good while, it's far from being back to normal now but I've recently been slapped by motivation to get back to blogging.

I'll give you all an update about my life in general right now then get on to something more personal and important to me if that's alright! 

Well in 2015 just after I was diagnosed with an ovarian cyst I actually met a guy and we have been dating for 2 and a half years, his name is Simon we are now living together with my grandmother and although it is quite difficult and sometimes cramped we are very very happy. He's honestly the most amazing man I've ever met and looks after me better than I could've expected. On December 14th last year, which happens to be my birthday Simon got down on one knee and proposed, since then we have been very happily engaged for almost a year and are hoping to tie the knot around either the end of 2018 or 2019 depending on finances, although admittedly I have already bought my wedding dress, oh I wish I could show everybody it but it shall have to stay hidden until the big day. 

In September 2016 I started university on a social work degree at University of Sunderland, I was absolutely miserable for two months on the course and got very little support partly because I wasn't able to stand up for myself and tell the lecturers what I needed, however one day after discussing whether or not I should drop out or do social work part time Simon pushed me into the office of the programme leader of Sociology. I absolutely adore sociology and Simon knew I would be happier there, it was a struggle but after a while the leader decided I could change courses and managed to get caught up within a couple of weeks and since then I've been overjoyed studying a subject I adore, I finished this year with 6/12 assignments being first class and the rest very solid 2:1 grades. 

Other than that there have been many ups and downs, me and Simon have both lost friends, gained new ones, had many many new experiences both together and separately, we have tried to move out, been screwed over by our local council, lost that house and moved back in with family but all of it has been a good experience for really growing up and maturing. I've been learning to cook, learning to love myself, learning to go out and be unapologetically confident in who I am, I've seen the Rocky Horror Picture show LIVE (OMG WOW!!!!), I've done things I never thought I would in my entire life, and it's been a hell of a time!

We have attended appointments and the Centre for Life to find out about our fertility as a couple, I've learned a lot more about myself and about my medical conditions which has been very enlightening. 

So, with that update out of the way there's something very important I need to move on to if I may. When I was only a little sprout, about 5 or 6 I was diagnosed with a disease known as Pro-opiomelanocirtin Deficiency Disorder (POMC), which is a very serious and extremely rare condition that causes severe early onset obesity, my dad also has this condition and it affects us both very differently, I don't want to say too much about it as I will get to that soon.  Recently I've been learning a lot more about my condition that affects pretty much every single aspect of my life, I've been looking for treatments, trials and support for people with this and similar conditions, I've connected with some lovely people who have taught me quite a lot in a very short amount of time and one thing I have realised about this condition is that there is not, anywhere near enough information or awareness about this disease for the general public, schools or even in GPs surgeries. Thus, I'm making a major shift in the kind of blog this will be, I am going to be posting a lot more about this condition, my journey and others' journey living with this, I will hopefully be able to contact others and find out about how they live with it. I want to document everyday life of somebody who has POMC, how it affects them, what kind of support there is available. Should I be lucky enough to trial a drug that's being tested to manage it now I want to document the process of taking it honestly, without any faffing or fussing. People need to know the truth of such a condition as it is very serious, life-threatening and difficult to live with as I have found out first hand. I would appreciate it if these posts can be shared as the purpose of this blog now is to raise awareness of POMC even if it is just in a small way, every little helps after all. 

However, do not despair as I am fully planning on keeping the lifestyle aspect of the blog running and I have many more ideas for advice posts, support, general discussions and so on but the posts may be less frequent than before as university is going to get more heavy workloads particularly in years 2 and 3. Please bear with me if posts aren't coming as thick and fast as liked. 

Thanks for reading and I hope you all come back to read more!

P.S. I want to thank everybody who, in the two years that I was gone, continued to read and comment on and share my blog posts, you're wonderful people and you're the reason I came back to this blog instead of beginning a new one! I hope you're all having wonderful lives yourselves!!

Love,

Katy. xo

Health Problems and Indefinite Break

Hey Everybody,

It's been a pretty long time since I last posted anything and I think it's time for a bit of a catch up and some unfortunate news... I've had a few health problems lately, last Saturday I ended up being admitted to hospital after an emergency urgent care and A&E visit. Basically this week has consisted of a lot of pain and I'm feeling very drained and poorly. This post is basically to let all my fabulous readers know that I've not been slacking on the blog because of laziness or anything as I've genuinely missed blogging but to say because I'm so poorly at the moment I'll be taking an indefinite break from blogging because I don't know when I going to get better (fingers crossed it won't be long). 

I'm sorry to say I'll be taking a break and I am hoping I get well enough soon so that I can get back to blogging as most of you know how much I love it, the time off should also give me some opportunities to plan some new posts for you lot which should be fun. 

Thanks to everyone who reads my blog and has supported me in my blogging journey so far.

Speak soon!

Love Katherine. X