Showing posts with label tips. Show all posts
Showing posts with label tips. Show all posts

Tuesday, 10 July 2018

Managing Weight Bias in Healthcare

Good evening everybody!
I hope you're all doing really really well, massive that you to everybody who read the previous post it was an absolute pleasure to write it and the response to it was awesome! Because of such a fab response to the more practical advice based posts I'll be planning a few more of these to come up pretty soon. From this point on I'll be using my summer to do 4 things one being blogging for this account, blogging for my university blogging platform, reading for my dissertation and enjoying my time off with trips, so I'll try to write as much as I can for both of my blogging roles. So, today's post is a pretty important one all in all and I have to stress as a disclaimer that although this blog is aimed at promoting awareness for genetic obesity disorders none of the advice or tips/suggestions I provide are limited to those with genetic obesity. This post in particular will be about how to handle weight bias in healthcare, something that I know fine well that almost every single overweight or obese person in on the planet will have or will face at some point. I know I have done a similar post to this but this one is much more in-depth and should be so much more helpful, hopefully. 
Source: MyGutTellsMe.com

The fact that there is so much weight bias, hatred, prejudice or whatever you like to call it, in society is hard enough to handle at the best of times but the issue becomes more than hard to handle when that weight bias creeps into YOUR healthcare. To really kick off this post I am going to tell you all a story... It was about 9 months ago I went into my local GP surgery, West Cornforth Medical Centre for those who are interested in which medical centres to stay away from, and I had been suffering from a chest infection, sinus infection, the psoriasis in my inner ears had flared up and I had made an appointment to attempt to deal with my chest infection. Being Asthmatic from birth I know how serious chest infections can end up being, I sat and explained my symptoms to the GP manning the surgery at the time and the first thing out of that man's mouth was "May I ask how you are managing your weight?". This isn't an uncommon thing in the lives of obese and overweight people, we deal with this kind of thing on a daily basis in healthcare, then have strangers on the street telling us we are putting a strain on our healthcare system by being overweight... as a side note I will point out that it is not our weight that most often is wasting money or time for healthcare systems around the world, if Doctors were willing to listen openly and actively to our concerns as human beings maybe we wouldn't be wasting appointments constantly poking for new Doctors who understand out current, very personal circumstances. The following are tips and tricks that I have had to develop over the years to get the healthcare that I not only need but that I am entitled to as a human being. 

  • Unless your appointment is weight related make it known that you will not be discussing your weight in the appointment - I don't know how many times I have had to do this. I've attended an appointment for dermatology or my chest infection and ended up being asked about my weight. Often times it can make you so angry you want to scream or hit someone but the most appropriate way to deal with that kind of question is simply say "that topic is not relevant to the matter at hand, I am here to discuss my original problem". It is as simple as that and you need not swear, shout or get upset. As long as you are confident in how you handle the doctor and remember that if it wasn't for people using their services they don't get paid, so make the most of your time at the Doctors office by only speaking about what you need to. 
  • If your weight is brought up again, without you explicitly discussing or asking about it, leave - Again, unless the appointment was weight related, and you are asked about your weight repeatedly, leave. You have not wasted your time to be hounded by questions regarding your lifestyle which may not be directly related to the problem you are presenting with. I fully understand that weight does play a role in many other health complications but if you are aware  your problem is weight unrelated then leave. I had to do this with the situation with my chest infection, the matter was pushed by the Doctor so I left. I ended up making another appointment later in the week and specifically requesting another doctor who was much more objective. 
  • Second opinion - This is a lead on from my last point. If your doctor is blatantly telling you that you health concern is weight related and you feel he or she may be incorrect then get yourself a second opinion and ask for an extended appointment to fully explain your concerns. Your health should be number one priority to all doctors but sometimes it isn't, often times doctors can be too focused on skin deep issues and associate everything with visible issues such as weight concerns. If you're not comfortable with your Doctor's decision, make an appointment at a later date and ask for a second opinion, it doesn't hurt and you might get a different or the same answer but at the least you have tried to ask. If it feels wrong keep asking, keep pushing for answers because you have been in your body all of your life and you know when something is wrong, a Doctor doesn't have that intimate knowledge of your body, this is especially true of those with genetic obesity problems as many doctors do not understand these conditions. 
  • Make Leaflets - This is something that I have had to do for a long time and I know other parents and people with genetic obesity conditions have done also. I have created an information sheet and a leaflet outlining what genetic obesity condition I have, what it is, what it means for me and what medications I can and cannot take. I often find that doctors do not read my notes which puts a serious barrier between myself and and good quality healthcare as they often treat me as the average oversight individual which is absolutely not the case. If you have complex healthcare needs I would highly recommend making information sheets and leaflets that tell your doctor everything he or she needs to know, especially if you will be working closely together in terms of your health. Often I do this when I get a new Gynaecologist, dermatologist or GP because they simply do't know about my genetic condition. Make those Doctors read the leaflets, make them understand YOUR healthcare needs because after all YOU are the most important person in that room when you have an appointment. 
So those are my main tips for dealing with weight bias in healthcare on a day-to-day basis. Eventually you will find a doctor who truly understands you it just might take time. Often you have to wade through all of the rubbish to find some treasure. I hope you have found these helpful and I will leave you with some parting wisdom:

Doctors do not know everything! You have been in your body longer than most doctors have been practising, you know yourself and your body so trust your gut!

You are a human being who is entitled to care, good health and supportive healthcare professionals. You can always make a complaint if you feel you've been treated unfairly. 

Bringing a dictaphone to your appointments can be a godsend, especially for those with chronic illnesses or memory troubles, dictaphones are a lifesaver.

You never EVER have to accept the words of one single doctor. There are many more who are willing to give you a second opinion. 

If your problems are weight related you are entitled to ask for psychological support to manage your emotions during a difficult time, even if those psychological problems are caused by your weight. Being overweight or bees is a stress on your mental health too!

Bring someone else along with you, its a lot less scary if you have someone you know will support you next to you during any appointment. 

I hope this has helped you and I shall be back sometime soon, once I have more posts ready to go that is! :) 

Katy xx
















Wednesday, 6 June 2018

The POMC Series: A Partner's Perspective


Hello everybody!
Earlier this week myself and Simon celebrated our 3 year anniversary of our relationship together, there have been many ups and downs in our relationship but we truly love each other and I wanted to take this opportunity to develop a post that I've been meaning to do for a long time. When I started this blog Simon asked me how he could help. This is his contribution, he has chosen to write and article for the blog outlining what it is like being in a relationship with someone who has a genetic obesity condition, and I myself could not be more grateful and proud of him. I hope you all enjoy his perspective and the next instalment of The POMC Series. Here goes...

"When a person is born into the world, they never have a choice in the cards they hold. Hair colour, the colour of ones eyes, even down to their individual personalities, nobody ever gets their say on what they want. This is no exception when it comes down to medical issues, issues that can be, or is, the bane of our existence. Personally, Asthma is my Achilles heel, one which has affected my whole life (Thank you, asthma!) yet it is a condition which I will never hope to submit to. However, there are some people in this life who really suffer much more that what we could ever comprehend, ones which we could never hope to understand unless we walk in their shoes. This post aims to shed a perspective in the life of my long-term partner, Katherine Simpson. 
The first, and best, picture I ever saw of this gorgeous woman

Me and Katy (her preferred name) have met under weird circumstances but we have that chemistry that just simply took off. No idea how she puts up with my randomness but that’s respect for you! We have had many dates out, however, it wasn’t long until I noticed problems with the way Katy was walking. She needed to stop on occasion and this only escalated the more I’ve been with her. Katy mentioned early early in our relationship that she suffered from POMC, Lordosis and a very unique genetic coding which is beyond my understanding. I have attended multiple doctors appointments and assessments as support and even medical professionals struggle with understanding what really makes Katy tick.

From my understanding, Katy suffers from a what-do-you-ma-call-it genetic deficiency in which her metabolism is permanently off. Because the body assumes that it is starving, fat is biologically formed and stored as a back-up energy source, not a great understanding as I mentioned but I wanted to write this without Katy giving me any direction so as to you you all what I see of this condtion. Due to this nature, the body can never truly function properly and this causes Katy to go up in weight. Newcastle RVI and Addenbrooks, Cambridge, are able to explain to a degree, and its such a difficult thing knowing that the one you love do dearly is not able to get treatment or help for an awful condition. Operations, some drugs and even gym has not worked; I can attest to how hard this sweet woman works, only changing shape but not losing weight whatsoever. I have experienced Katy suffer from an ovarian cyst which further compounds how much exercise and activities she can participate in. It is so upsetting to listen to your partner apologise for being who they are, because a medical condition stops them doing things they they desperately want to. 

Personally, I encourage Katy to the best of my abilities to rest and take breaks, yet she always felt guilty that she cannot have a normal life like everybody else in society. Memories with her are much better than distance she can walk and I have bad  short term memory anyway so there is no likelihood I would remember how far we travel anyway! Walking around places like Newcastle and the Metrocentre has always been a struggle, 10 minutes of walking puts a huge strain on her back, legs and pelvis. She is always hungry and finds it very difficult to manage that, she can eat a bigger portion than me and be hungry again minutes later as if she has never eaten at all!, any deviations can physically knock her sick. This is a medical attribute which I am wholly in the dark about and I am still learning more each day. 

I do feel empathy that Katy, no matter how much effort she tries, will just continually struggle. As her supportive partner, we will fight tooth-and-nail for medical and practical solutions but there are very limited channels open. Aspects of our life together have been negatively affected, I can’t express the pain you feel when you are walking down the street, hand-in-hand, with a woman you see as truly beautiful when she gets some disgusting comments shouted at her from afar. You want to go up to them and tell them the whole story but some individuals do not comprehend other individuals circumstances. Because of this, Katy’s confidence with being around others is shot; I wish she could see herself as the beautiful woman I see her as. A medical condition should be no reason whatsoever to make people feel isolated from the rest of modern society. Despite the medical flaws, her conditions does not own her, she aims to own it!!
One of our best nights together at Russell Howard

When I first met Katherine, it was a first for being with someone with such debilitating medical conditions. I was petrified when her cyst flared up two years ago, now I’m so relaxed she jokes that I’m too relaxed! Truth is, If I cannot compose myself to be of help, I should not be a lover at all. I am not size-ist so I do not judge on weight. However, I have have learnt so much about her and myself throughout the three years of us being together. I have adapted to Katy’s needs and as long as we make preparations, we still enjoy days out, even with back pains and struggles and my asthma! My general rule of thumb on looking after people is this;

  • Whoever it is you are with, Love them 120%. Yeah, time management is hard, yet, everyone cares for their love. The addition of unorthodox medical conditions are no exception.
  • Always keep calm. Managing tasks and looking after Katy is challenging but we always got there in the end. Patience can be low but do not snap and always try and communicate.
  • Never go in a relationship if you are not willing to commit. A no-brainer, this one!
  • Take time to understand your partner and what makes them tick. They will undoubtedly feel uncomfortable with themselves and they are humans too. No different to the rest of us!
  • People can be abusive, what do they contribute to life anyway? You and your partner will be 100% better people than what bullies will ever be. 
People are still people, those with these medical conditions challenge life in hardcore mode, only strong souls can cope, I don’t believe things in life are given to you unless someone, somewhere knows you can cope. Katy copes so well. It is a strain on our relationship at times because I just want to help her but I know I am limited, if I could wave a wand and change things for her I would. Anybody who cares for someone with a long-term condition who loves them would change it for them. The only thing I can suggest for those living with, caring for and loving people with genetic obesity is be there for them and love them and make amazing memories with them, because just like everyone else on the planet, people with genetic obesity conditions are still people and I will always love my amazing partner and accept her for who she is."
By Simon Steel

And there you have it. My wonderful partner wrote those beautiful words as he writes everything else in his life, with passion and meaning. I hope you all found this post enjoyable and enlightening, I am off to give my fella a massive cuddle!
Katy xx

Sunday, 17 September 2017

Exercise tips and Tricks - The POMC Series

Hello everybody!

Happy Sunday once again and I hope you've had an amazing week. Things have been absolutely maid here as Simon started back at University on Monday and I'll be getting ready to carry out more buddy duties this week, hospital appointment on Monday and dentist on Wednesday, feels like things are non-stop to be honest. Well, it means I'm not bored ha!
Anyway, I know I have been pretty delayed in posting recently but what with York and uni I've had a few post scheduling mishaps, mainly because one post that should be coming soon about a possible POMC "treatment" for want of a better word, will mean I'll need to do a massive amount of research on it and a lot of the information online I'm finding quite inaccessible so I'm relying on my doctor at the RVI to tell me a little bit more tomorrow. Obviously there's a post going up today about exercise tips and tricks that I've learned over the years, this one will include information on the best kinds of exercise I've found really helpful and what you can do to make the exercising process easier if you've got a genetic obesity condition. So, without further ado lets get on with it!

Exercising for anybody who is obese can be a difficult and emotional thing, I know a fair few obese people who simply don't want to exercise partly because they are scared of failing in terms of weight loss and partly because if they were to go to some local gyms in my area they are likely to get abuse shouted at them, which I always find infuriating... Why discourage somebody from going to the gym to improve their health when that is what a gym is for?! However, for people with a genetic obesity disease often they can put far too much pressure on themselves to work harder and lose the weight which as I've mentioned in many previous posts, with certain genetic obesity conditions it doesn't matter how much exercise you do the weight just won't drop off like the average person, so this can result in these people injuring themselves or putting too much stress on their bodies. I mean I'm not an exception I've spent hours doing stupid exercises trying to 'drop the belly fat' and lose 4 stones in a month' with crunches and such but it never works. 

Eventually when I got to 18 I realised that because of my disabilities the exercises that I was trying to do were harming my body and making me worser overall, I was trying to exercise to lose the weight rather than to be healthy and that was when I knew I had to change my mindset. The thing is if you exercise to lose weight you're not looking at the big picture, you're only looking at the outside and surface of your body, if you start to think that the reason you're exercising is to get healthier, to be more flexible and fit then you can open your mind to different exercise and routines that are out there and develop something particularly appropriate for you and your body. Getting fit on the inside might help the outside but in all honestly being overweight doesn't mean you're unhealthy, I have friends who cannot walk up the stairs without becoming breathless that are smaller than average sizes and have no medical problems like asthma, then I have obese friends who can walk a mile easily and not break a big sweat. 

I'm going to make a list now of things that I did once I had a change in outlook towards exercise, hopefully it will give some insight into how I managed to develop and exercise routine that is appropriate for me. 
  • I wrote down what I was looking for with exercise, I wasn't looking to lose lots of weight just to become fitter and healthier.
  • I did a lot of research on what kinds of exercises fit the criteria of what I wanted. Happily I found that Yoga was something that would improve my flexibility, muscle tone and wasn't too strenuous for my body. 
  • I took up Yoga and took classes once every week, I started to see a small improvement in areas such as better sleep, my body didn't feel as tense which was a much needed improvement. Yoga has now become part of my daily routine as have some particular stretches; I don't want to do too much exercise as it is extremely painful for my legs and back when I over do it but I do enough to maintain the level of health I have now so my disabilities don't get any worse. 
  • I made small lifestyle changes, years ago, rather than parking in the closest bays to shops I would park as far away as I could so i would have to walk father which for a time genuinely did help me, however since my weight gain has not levelled out and I have put more on I am not able to do that anymore, walking in limited for me however I would highly recumbent it for those of you who are able to. 
  • Swimming was also a wonderful exercise for me as it tightened up muscles in my body around the stomach area making me feel better about myself, however swimming is also great as you can use it to relax your muscles and just gently bob along! No exercise has to be very exerting as I mentioned. 
  • Due to a faulty hypothalamus I overheat and dehydrate extremely quickly so I always make sure I am hydrated and I ensure I take all medication with me such as my inhalers, my pain medication and I make sure I either exercise with someone else or I take my phone so if anything goes wrong I have a way of contacting people to get help. 
I would also recommend that before you exercise, particularly if you have a genetic obesity disorder that you go to your doctor and find out if there is any support from professionals or practitioners who could help you develop your own exercise routine, sometimes if you do it alone you may be a little over enthusiastic and end up damaging yourself. Always remember as well when you are trying to get yourself into exercise, for whatever reason, you won't see results straight away. A cliché as it sounds Rome wasn't built in a day and the fact that you are trying at all is an achievement you should be proud of.
Thank you all for reading and hopefully get the next post out within the next few days!

Have a wonderful Sunday, bye for now!
Xo
















Saturday, 9 September 2017

Making the Most of University!

Hi all!

Today's post is something that I've only recently gotten into to be honest, I'm a firm believe that you must make the most of every experience in life and make sure you keep a positive attitude and because Freshers week is so close I thought a post on how to make the most of your University experience might be good for some. 
I'm going to speak from experience here so my situation was slightly different from others, as is everybody's experience; so, when I started uni back in September last year I was so nervous and anxious, mainly because I had 0 self esteem or self confidence. I was a wreck pretty much all year, jittery and scared, I only made 1 friend the whole year (who is awesome btw) but wanted to approach so many other people I was just too anxious and obviously anxiety got the better of me. It's only since I have truly embraced who I am and what I can do that has given me a kick up the backside and made me realise I am worth of friendship, love and a hella good time at uni!
Image from Google

Everybody will be nervous starting uni for different reasons whether it's the fact that they need a little extra support and don't feel they know or can ask for it, they're moving out for the first time, some people will feel anxious because of how the look (like I did) and not want to approach anyone. Whatever your reason for being anxious or nervous you've got to remember while you're probably feeling alone and like you're the only one who feels that way you are literally surrounded by hundreds or thousands of other people who are feeling the same wishing someone would talk to them first. Be that person. There are loads of ways you can make the most of your time at university and I shall list them below right now, there will be a fair few so please keep reading if you can!
Image from google - My University
  • Go to freshers - You don't necessarily need to attend all of the parties or events going on, if partying isn't your thing don't go, simple as. Freshers is an event that caters for everybody, although it might not be portrayed that way, it really is. The university I attend puts on comedy hypnotists, beach walks with fish and chips, pride marches and so on. Honestly, it's a great opportunity to take part in something you wouldn't usually do and meet some awesome people along the way!
  • Go to the freshers fair - The freshers fair is an opportunity to see a great deal of the things that your university offers you, you get to see people about volunteering opportunities, you can get yourself a buddy to help through your first few weeks at uni (if that service is offered at your uni), learn about the services available if you need extra help and support and find out about all of the clubs and societies you can join if you feel like it. 
  • Sign up for the clubs and societies - Honestly, with most universities there is literally something for everyone! You can find anything from a community based upon your chosen course, volunteering societies, debating clubs, swimming clubs, drawing societies, gaming societies and so so so many more, in some universities there are even Harry Potter societies for those Potterheads among you! It's a brilliant way to meet people with similar interests and ideals. 
  • Create your own society - Can't find a society you like? Why not create your own?! If theres nothing that piques your interest right away then that's a good thing and don't get disheartened!! There, in most universities, is an opportunity for you to build your confidence and knowledge by creating your very own society. So, remember that Harry Potter society I mentioned, if that's not your thing create a Lord of the Rings society or a society for those who like to travel. With university the world is literally your oyster and you're bound to be given a great deal of support to help you in your endeavours. 
  • Access the support you need - This one is really important, if you feel like you're going to need extra support due to your circumstances then it's really vital that you get that help right away. If you've got a learning disability or think you might have one go to your disability support and they can test for certain learning impairments such as dyslexia, dyscalculia and such. If you feel lonely and worried about moving out enlist the help counsellors help, religious services in the university are available for those of you looking for spiritual guidance and financial support from specialist advisors is very helpful when first moving out. You can even access services in most universities libraries where they can teach you academic skills such as how to read properly, how to reference, write essays and revise to best suit you!
  • Get involved with volunteering and fundraising - This is something I've just gotten into myself with the awareness raising for POMC and fundraising, volunteering is an amazing opportunity to give something back to your community and support other people in need, you can get volunteering opportunities that link directly with your course or get involved with something you're passionate about, many students who have a placement in a year of their course choose to volunteer and carry their placement through their volunteering pathway. It's a brill opportunity to meet others who like volunteering and have the same passions. 
  • Attend your classes - In terms of the academic side of things to really get the most out of your course you really do need to attend as many lectures, seminars and practicals as you possibly can, this is a given as if you don't go you don't get the extra  in-depth explanation of a topic... even if sometimes it does seem like lecturers are reading off slides you need to remind yourself that sometimes students in the class may bring up good points who you should be there to note down as every little helps. I think almost everyone would love a first class degree, right?
  • Make a budget - Again, this is something I have only learned recently as well. Often when you get student finance for the first time it can be a shock to the system, especially if you're living at home, to have that much money all in one go and you might be tempted to go mad but really it's much easier if you set out a budget first. Make sure any direct debits that need to be paid are paid on time and all outgoings are sorted first because then you know what you're left with and can use that as you see fit. Just make sure that you aren't leaving yourself short so you have no money to g out and do fun things. If you need get help from the universities financial advisors.
  • Keep in touch with the ones you love - This is very important regardless of if you're living at home or away. If you're living away you'll obviously feel lonely and miss your family and it can be extremely daunting the first time you leave, keeping in touch with them can make you feel at ease knowing everyone is okay (and they miss you as much as you miss them) but by keeping in touch things will gradually get easier, if they don't maybe consider if you've modes out at the right time. When living at home always make time for your family, sometimes with a very heavy workload and lots of exams you can lose yourself so make time for your old friends and family so they know you're still there.
  • Read, read, read! - Reading in university can be very difficult going on to such a different kind of reading from sixth form and college but believe me it is absolutely essential. Reading gives you a greater knowledge of a topic and a much more detailed and in-depth look at it, most of the times reading will be set by lecturers and will be available online but honestly as much as it might be hard at first, do read the books, articles and journals you're given as it will definitely help and all of those little things can be used in essays and exams. 
Well, that's all the advice I have to give right now, but hopefully it has helped and I hoe you all have fun at freshers and have an amazing experience at uni!!
Thanks for reading.
xo

Thursday, 31 August 2017

Stigma and Lack of Knowledge - Hints and Tips to Cope

Good morning my lovelies!
Image from google.com

I hope you're all having a good day, today's post is something that I, myself, and many other people with rare conditions have struggled with over the years. I'm aware that there are parents of people with POMC who have struggled with this also and this is a problem that truly must be tackled. This problem is stigma.
 Throughout this post I  will be discussing stigma and a lack of understanding those with genetic obesity diseases often face; I am, however, fully aware that stigma is not only attached to genetic obesity conditions but a countless number of diseases, disorders and other illnesses people suffer from, I'll be discussing genetic obesity on the whole as that is what I know best but this information and advice can be applied to whatever impairment or illness someone may suffer from that doesn't get the understanding it requires.
Over the years I have found that it's often been very difficult to get the support needed from friends, schools, medical professionals and even family because there is a huge stigma against those who are obese, just as there is with people who have, say, dermatology conditions, people often see such ailments as contagious when they are far from that. In terms of obesity however, we live in a society with strict rules on what is and is not acceptable for weight and body size, often times people look at me (using myself as an example as I have no right to assume about other's experience) as if my body is doing them wrong in some way, they look at me as if I am offending them with the size of my jeans, as if I have personally insulted them by me being fat. I could discuss society and social stigma around obesity for hours but i shan't bore you with that just yet; no, what I will say is that because many people do tend to look at an obese person as somebody who overeats, is too lazy to get out of bed and point blank refuses any healthy lifestyle activity it can be extremely difficult to get people to understand that there can be a real, genuine medical condition behind the weight. I'm aware people with PCOSleptin receptor deficiencyPrader-Willi Syndrome and many more conditions have been faces with a great lack of understanding in school, when schools were not fully supportive of obesity related illnesses due to their underlying medical conditions, meaning their school lives were made much more difficult; this is absolutely the case for me also as my primary and secondary school both took a great deal of convincing that I was ill instead of believing my obesity is genetic rather than anything else. 
Image from google.com

GPs and doctors often tell me to lose weight then my back will feel better, they fail to understand that that for me and many other people is not always possible. Often this can lead to people, again regardless of condition, feeling very frustrated,  scared and isolated if they feel their medical needs aren't being listened to because a lack of understanding can stem from stigma around an illness. For example, often people with Myalgic Enchephalomyelitis (ME/CFS) can be met with claims that their illness is psychosomatic (or "all in their head) which reinforces the stigma that those with ME are viewed as lazy or uncooperative/unsocial, which is not the case. Therefore, I have created a small list of things that you can do to help accurately inform GPs, schools, friends and family of your condition so you can be less stigmatised on your own terms as well as give people a better understanding of your illness. 

  • Create an information sheet/leaflet or poster - If you can do some thorough research on your condition and put it together into a leaflet or information sheet, including how the illness affects you specifically, what your medical and emotional support needs are, how a school or GP surgery can support you and what to do in an emergency (if applicable) can often be extremely helpful so people are able to get a clear idea of what you deal with and how to help you be that best you can be. For example, mine includes a section of what I can do/how I feel on a good day and what happens on a bad day. This so far has been helpful in not only getting support but also writing things down has helped me recognise the signs of when I'll be having a bad day. 
  • Getting the right support - In terms of schools, colleges and universities there are usually many different ways they can offer to support you, it's important that if you feel you need some extra support then go for it! Gather as much information on, for example, the services your university offers, they usually offer services and support from counselling, financial advice, academic support, disability support, buddy systems and much much more. These are often a wonderful source of help and understanding without judgement, and you are less likely to feel so alone if you tell people openly and honestly what your condition is and how they can help. You may make some good friends that way too! GPs can offer similar services so make use ladies and gents!
  • Get in a guest speaker - Now this one can be difficult. If you're under the care of a particular team in a hospital or similar setting, asking one of those practitioners to come and talk to your school/college or university can be extremely helpful and very enlightening for those people involved in the meeting. As a child my grandparents arranged a meeting with my school teachers and form class and my specialist endocrinology nurse to discuss exactly what is "wrong" with me. Often times getting someone with more authority to explain a condition is much better than getting parents and grandparents to explain it for you. 
  • Document doctors appointments - Something I've found very helpful in the past is writing down or recording and transcribing hospital appointments. If, like myself you go to a number of appointments or are under the care of one main hospital for the majority of the time, it may be a good idea to keep a record of all conversations from those hospital appointments and often doctors from one area do not communicate with other doctors, for example one doctor told me that I am not able to have bariatric surgery as my weight gain would not be stopped by this according to her, however another wanted me to have that surgery despite me telling them no. If you keep a record it also allows accurate information to be given to different professionals, you can show teachers certain parts of the transcripts, give them to your GP to look at, show family and friends what is going on and how your condition is progressing so they can get a better, more realistic understanding of your illness. 
  • Have a chat - If you're lucky enough to have understanding family or friends, simply having a chat could make all the difference in the world. Some people are more responsive to informal talks over a cup of tea or coffee, talking things over in a relaxed and comfortable way can give somebody a much deeper insight into what you go through and how they can help. Sometimes when you're talking to a friend or family member you can tell them information you may not feel comfortable telling other people, and this network of people can be your strongest support systems in the darkest of days. 
Well, that's it everybody, thank you so much for reading, please keep sharing, commenting, supporting and reading. I honestly hope this has helped somebody! Remember - KEEP FIGHTING! 

XO

Saturday, 14 March 2015

Blogging Tips & Tricks

Hello all!
I've been blogging for a while now and this particular blog is not my first, although it is my favourite of all 4 of the blogs I've maintained. I've had this blog for almost 3 months now and I think it's high time I put together a little list of all the blogging tips and tricks that I've learnt over the last few years of blogging. Hopefully some of you will find this useful, I think if I'd had a list of things that I know now before I began blogging it would have been a much smoother experience but I'm honestly very happy with my blog at the moment although a few things need to be tweaked soon. So, without further ado I shall begin. 

Schedule!
Once you've got through the main stages of starting your blog, so things like choosing on the type of blogger you want to be (e.g. I label myself as a mainly lifestyle blogger but I do like to throw a bit of fashion, beauty, food and other stuff in there too), creating the theme of your blog and so on, I would say it's then a good idea to plan or get yourself into a blogging schedule. Schedules will help massively because not only do they give you motivation to keep posting but life can be made much easier by scheduling particular days on which you'll post. This way you'll be able to keep posts consistent and give your readers something to look forward to regularly. 

Stay Consistent
In the previous point I mentioned that keeping posts consistent will keep readers interested and keep the traffic coming in. Traffic is definitely not the most important thing when you're blogging and t's a real shame that a lot more bloggers are focusing more on the traffic that the actual writing but admittedly we all like to see that we have traffic coming in because it means we're drawing the attention of readers and keeping them intrigued with content. By posting every other day or on particular days you'll get into a routine in which you'll become consistent in your writing/posting times. 

Carry Notebooks
I highly recommend that you keep a notebook or pad of paper nearby because the majority of bogglers I've spoken to personally say that inspiration comes to them in the most inappropriate of places... like when you're on the phone and there's never a pen near you. Notebooks, pads or even notes in your phone mean you're able to write down some of your best ideas for later on. It's a good idea to plan ahead on this one as well because the topics you're looking forward to writing about can be worked into your schedule so you can definitely get your best ideas out there at some point. 

Find Inspiration
If you're stuck for inspiration and need a bit of a helping hand there are a good few ways you can get over bloggers block. I'd definitely recommend having a bit of a brainstorm with friends or other bloggers you talk to, this means you're all sharing ideas in an open way and ideas can be shared that you may never have thought about in a million years! Another way of getting inspiration for posts is by asking your audience what THEY think you should write about, because who wants to read a blog that doesn't cater to what their audience want to hear about? By asking the audience also a sense of respect and value is given because you're listening to what they would like. 

Look into Social Media 
When I first started blogging on a serious level I was told social media was a big part of blogging and it would definitely help get my blog seen and I'd get more feedback. Obviously thinking I knew better I didn't take social media very seriously but it's genuinely a pretty big part of blogging. Twitter, Instagram, Facebook and Bloglovin' are significantly involved in getting blogs seen and networking with other bloggers from my experience. I've been able to meet some wonderful bloggers such as Danielle from Underland to Wonderland and Tamara from  Me Just Talking To You. Other fantastic bloggers have been able to give me advice and support throughout my blogging experience and I would say it's something you wouldn't want to miss out on even if social media isn't your thing. 

Write What You Love
I have always said whether it is blogging, writing novels, magazine articles or whatever it is you write always write from the heart. If a blogger isn't writing with passion or interest then it shows greatly in their posts. This can be a major put off for readers, I  prefer reading things that you can tell are from the heart because they tend to lure me in and keep me hooked! The same goes for writers who don't write as they speak, it's not believable when someone writes things like 'verily' or 'forsooth'... I have no idea who does write like that but you get the picture. It's not real. Give your readers the REAL you and they'll thank you for it in the end. 
Thanks so much for reading, hope this helped all you fledgling bloggers!


Love Katherine. X

Wednesday, 21 January 2015

Work Placement Hints and Tips: Making a Good Impression

Hi All!
Recently I've not had much time to post anything on this blog so for that I have apologies, as many of you will know from a previous post I'm currently studying Health and Care at college (and loving it!); well after three months of settling in, getting used to assignment formats, making friends and quickly grabbing myself the student representative position for my class, I can finally say the part I've been most excited about has finally arrived. Placement! From day 1 all of us on this course knew we would have to do at least 100 hours of practical work experience, excluding simulation ward time, so all the girls in my class have not stopped talking about where they would like to work and how excited they are. It's a really exciting time for everyone, particularly the younger girls in the class who have just finished year 11 and are being thrown into the world of health care work.
Well today I visited my place of work placement  for a taster and it was fantastic! Some of my peers have gone to residential care homes, GP surgeries, Primary schools and day care centres for severely disables and vulnerable people. Where did I go? Well I get to work in a local Butterflies Day Care Centre for babies and children between 4 months and 3 years old, and admittedly it was a difficult day dealing with 23 young children with no official training and 2 other staff members on hand but WOW it was such fun! Before the fabulousness of today got going I and the rest of my class was extremely nervous to start work placement, one girl was convinced an old person was going to beat her with their walking stick! So I thought it might be helpful to make a short post on how to deal with first work placement nerves and the best way to make a good first impression on your employers.
1. Introductions - It's always a good idea to introduce yourself a few days or even a week or so before you first start work, this gives the impression that you're enthusiastic and eager to start work positively. Get yourself acquainted with whoever it is you'll be working with so it doesn't seem as scary on the day.
2. Induction - Usually your place of work will give you an induction the day you begin work but its always a good idea to ask a few days before you first go. This will help you get to know your way around, and you should find out about fire procedures, fire exits, bathrooms, staff rooms, lunch rooms and so on.
3. Questions - On your initial visit to your place of work it would be helpful to ask any questions you need to know, what do you wear? Who do you report to? What happens in an emergency? What time do you start and finish? What is the lunch and break situations? Make sure you cover everything you can think of so you are completely prepared for the first day.
4. Look Smart - Obviously placement isn't a fashion show and you really don't need to look like a model but looking smart and professional with help give the right impression to your employers and clients you'll be meeting. Often employers will ask for black trousers, leggings or knee-length skirts/dresses if they're modest, along with pumps or appropriate heels. Depending on the work you may be given instructions about how to wear your hair, for example, because I am working with very young children and babies I was told to tie it up so it cannot be pulled.
5. Get There Early - Getting there early shows that you are alert, prepared, willing and eager to get started and you'll definitely make a good first impression if you're punctual!
6. HAVE FUN! - It's really important to stay professional but remember while you're getting your experience just enjoy the time you have, it is an experience after all and you are bound to meet some lovely people and learn valuable skills from your time. 
I hope this has helped someone out there. 


Love Katherine. X

Monday, 12 January 2015

College Vs. Sixth Form: My Experience

Hey Everyone!
Since it's officially my first week back to college after being ill I thought this would be the perfect time to do my comparison between sixth form and college as I've had the privilege of experiencing both environments.
Image not mine, from Google
This month it will have been five months since I and thousands of A-Level students received their final set of A-Level results. For many it will have been extremely daunting, it know it was for me! I've never excelled when it comes to exams, I get that pre-exam nervousness that then tends to linger until the end of the exam and then post-exam panic begins to rear its ugly head. I can't win.
I was utterly convinced that I would be running out of my sixth form centre with tears spilling down my face after my horrendous results had been exposed to me (and the little hoard of friends I had with me at the time) but I was pleasantly surprised to find that I had done rather well; better than I had expected. I say I had done better than expected because after finding out what it was really like to be an A-Level student at a sixth form centre, I was not expecting anything good at all to come from my A levels.
After surviving years 7 and 8 at my lower school and achieving good results in most of my exams I was determined to continue my education after year 11... that was until I hit year 9 and the 'Gateway exams' arrived. I'm sure all of the people who read this that are currently around the age of 17 or 18 will remember the moment your teachers told you about picking your GCSE's and having to take the 'gateway exams', I personally was very excited about taking Music and Business Studies, music didn't turn out too well but one can't complain when the rest of the GCSE results we're, for me, fantastic. My GCSE results made the decision to continue education concrete. So, I chose to attend a sixth form college and chose my subjects, Health and Social Care, Religious Studies, Sociology and Psychology. That was when my journey as an A-Level student began. My first day of sixth form was SO exciting, I was looking forward to many more free lessons, more independence and being treated like and adult with respect by teachers. After the compulsory 3 day orientation I was really motivated that I would do well that year, I would focus more, revise more, I would get good grades and most importantly it would be easy! No. No. No.
Oh my was I wrong. Yes, despite the 6 or 7 free lessons I had per week and freedom to wander out of school in those lessons I still spent most messing about or revising for exams. Sixth Form is, excuse the language but it's bloody well difficult! If you think it's going to be just like your GCSE's you'd be wrong, the jump from GCSE standard and A-Level standard is absolutely huge! We weren't informed this before choosing out A-Levels as a group of potential students; when I discovered a C at GCSE is an E at A-Level I'm pretty sure my heart stopped and I lost the ability think for a moment... Me, an average student who barely scraped a C in maths and Science at GCSE taking heavy workload subjects such as Sociology and Psychology. WHAT WAS I THINKING?! Never the less I pushed through the first few months of sixth form preparing myself for the January exams which came and went with all of the usual exam stress, panic and hours and hours of endless revision. The results were more than disappointing, I was disheartened more than I have ever been (which is saying something for me because I'm easily disheartened, or was I should say) but I am thankful for those dreadful results. Why? Well I shall elaborate. Those results shocked me, panicked me and scared the living daylights out of me! If I didn't get my head down, spend more time revising, keeping on top of the enormous amounts of work I was, and you will be, given as an A-Level  student I would fail, I wouldn't have the bright future I'd always dreamed of; so, that's what I did. I concentrated, gave up a big part of my social life, spent my time keeping focused and grounded and it did pay off. When you are able to get your head around the immense changes in the work standard, load and quality you will be given and must understand and feedback to your tutors you will be fine at A-Level. A few reasons that sixth form isn't for everybody:

  • There's a huge amount of pressure put on you.
  • Lots of essays and assignments due.
  • Many exams and mocks the can become stressful.
  • You don't get as much freedom as you'd expect.
  • Often you may need to drop a lesson you enjoy in the second year. 

Image not mine, from Google
With the right attitude A-Levels will be much easier to deal with; personally I absolutely loved the free lessons I had in my final year of sixth form. However, I chose not to attend university for my own personal reasons and opted to take two years out and take up a place at a local College, now after experiencing sixth form and, to be quite honest, the very little freedom you do actually get, I was shocked as the whole dynamics of what I thought education was like, completely changed. Everything went from, teachers being on your back constantly to having your own independence at college, it was a wonderful feeling, the facilities on my current course are far more advanced than any facility in my previous sixth form centre; the opportunities offered will provide many a fantastic experience, more opportunities to gain extra qualifications. Now my current course is BETEC and admittedly this is a better type of course for myself given exam stress and such but I simply can't fault my college experience, the variety of people I've met is wonderful, I've been given opportunities for course representative positions, LGBT officer positions, board member positions and so many more chances to take positions that are never offered to you in a sixth form environment. Personally, and many of my classmates I've spoken to agree that their experience at college has been wonderful and has given me the opportunity to gain a whole new level of individuality, independence and qualifications, so I have to say if you're planning on continuing your education, don't bypass the thought of college, it may not be in your comfort zone or you may want to stay in a place where you have friends, you know the teachers and such but take some time to think about what you really want to gain from your educational experiences and what you really want to do. Yes, Sixth Form provides a good foundation for independence and opportunities but often college goes above and beyond the chances for personal and professional development. Consider college and sixth form, I have to say my experiences of both have been positive however College is a wonderful place to gain a deeper understanding of yourself and others around you. 
Thanks very much for taking the time to read my blog and putting up with my opinions.


Love Katherine. X

Saturday, 27 December 2014

Driving Test Tips!

Hi All!
Trying to tackle those pesky driving test nerves can be just as daunting a task as the test itself but don't despair! If you can get your nerves under control, or at least toned down a little, it will make the whole experience much easier no matter what the end result.
Everyone, no matter how old or how experienced they seem to be, gets nervous before taking exams and a driving test is no different, in fact a driving test is one of the most nerve-wracking exams you'll ever sit and it's absolutely understandable that people get stressed and nervous before it. As a teenager particularly there is a significant amount of pressure and expectation from friends and even parents in some cases which makes the experience a whole lot more stressful. I have gathered together some snippets of advice and helpful tips from my experience and others' experiences of the test that should help you prepare for your own UK driving test. One things that should be noted throughout this post is that I recently passed my driving test and I suffered from extreme nervousness, however I managed to pass with only 3 minors first time simply by staying as calm as possible. Here we go:
1. You need to be patient.
When you decide to get your driving license you will be eager to get mobile as soon as possible but you need to be patient, son't expect to be a fantastic driver the moment you get into the car, the more you worry about your own ability the lower your confidence in your ability will sink. This was a major issue of mine, I love to be the best as everything but that just wasn't the case when driving. Driving is a skill that takes time to refine, patience and confidence in yourself. When you're confident and patient with your own ability you then have the change to focus more on what you are learning rather than the negatives e.g. if you've hit the wrong gear or something. This applies on the day of your driving test, be patient with others on the road as you're liable to be agitated or tense, be confident in your skill and this should help lessen nerves.
2. Read up!
It is absolutely essential that you read your literature thoroughly and ensure you are aware and you understand what it all means. Read the Highway Code as well as The DSA Official Guide to Driving: The Essential Skills, The Official DSA Theory Test and The Official DSA Guide to Learning to Drive. It also wouldn't hurt to grab a CD or DVD which you can use on your computer to allow you to watch over people's driving tests, see what they did wrong and so on. I personally recommend GSP Driving Test Complete.
3. Make sure you know your weaknesses.
When you are aware of your weakest areas when driving you can confront your instructor with them, ask for more lessons based around those weaknesses. My weakness for example was roundabouts and lane discipline, I am also aware of people whose weaknesses included traffic signs, motorway rules and many more. You must tell your instructor what your weaknesses are because if they are not addresses they could result in a minor or a test fail.
4. If possible practise out of lessons.
If, unlike myself, you have the chance to drive with insurance outside of lessons with a parent or someone over the age of 21 with a valid driving license older than 3 years, take it! Practise makes perfect after all. However DO NOT drive on the road if you are not confident with your ability. An insecure driver makes for a dangerous driver.
5. Drive in different weather conditions.
Obviously this is going to be a difficult one as weather in Britain is unpredictable. If you can do private practise outside of lessons go out when it is windy, raining, snowing, good weather. Each different weather condition means driving style must be altered. Driving in rain is much different from driving when the weather is good as any driver should tell you.
6. Keep it on the DL.
If you're bad at keeping secrets this one might be difficult. If you tell only a few people about your driving test you will have a lot less pressure and expectation placed upon your already nervous shoulders. I highly recommend that you only tell your parents and a couple of close friends. Also if you tell a lot of people about your upcoming test you're basically asking for trouble, you're inviting people to tell you all of their driving test horror stories, how they failed, their cruel test examiners (who most likely we're very nice but people can get bitter if they're failed). Also don't believe the rumours about people being failed because of their appearance. Of course of you go into your test looking as if you've been drinking for a good 4 consecutive nights that could have an impact. It is important that you're comfortable and refreshed and ready for your test.
7. Sleep, eat, drink.
Make sure you have at least 8 hours of sleep to wake up well rested, have a good breakfast (many driving instructors recommend Bananas for an increase of potassium) and hydrate yourself, take a cold water bottle with you if necessary.
8. If all else fails.
I, and as thousands of other drivers across the UK will, highly recommend Bach's Rescue Remedy which is an over the counter calming mixture. I swear by it as it has gotten me through many educational exams and most recently my driving test.
 I wish all of the prospective young drivers the best of luck in their and your upcoming test!


Love Katherine. X